Pulmonary sequestration

Well, it's not the outcome we'd hoped for, but we have the results of the CT scan. It's not a CCAM as they originally thought, but rather a pulmonary sequestration. I've added some links in the "Resources" area of this site; they explain it better than I can. After talking with both the surgeon at Children's Mercy (the one who ordered the scan) and our pediatrician here, I understand a sequestration to be similar to a CCAM in that it's non-functioning lung tissue. They differ, however, in that a CCAM is generally cystic and does not have any blood vessels feeding it, while a sequestration does have blood vessels attached. The scan report very plainly stated that there were blood vessels present in the lesion, which measures about 2.5 x 1 x 1 cm. It's not large and is not interfering with Kristen's breathing at all. This one is not attached to the airway, though some of them can be.

Even though she's having no difficulties, the sequestration needs to be removed. If it is not removed, there is a chance it will become malignant later in life. Because of the blood flow through the lesion, it can also cause circulation and heart problems.

As long as she has no respiratory infection, the sequestration can be removed thoracoscopically (minimally invasive). If she gets an infection, it becomes much more difficult to remove the lesion and would most likely require opening up her chest.

The prognosis seems quite good after surgery, and this surgeon has performed many of this type of operation. We still have to schedule it, but will most likely be looking to have this done mid-August. Kristen will be about 3 1/2 months old at that time, and we'll still be ahead of the time of year when she would be more likely to get a respiratory infection.

Our faith is not wavering...we know God is in control of the situation and will bring us through it! He has given us a beautiful baby and shown us His mercy time and time again since her arrival. We thank all of you for your continued prayers!